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Navigating Life With Changing Vision

National Federation of the Blind

Free White Cane Program

This program distributes white canes at no cost to people who are blind or have low vision across the United States. You can choose from a variety of sizes and requests can be made as often as every six months.

Siegel Rare Neuroimmune Association

How to Manage Visual Issues

This video features a presentation by Deb Nikkila, MOT, OTR/L, about managing changing vision after an NMOSD or optic neuritis diagnosis.

National Federation of the Blind

NFB-NEWSLINE®

It’s more than news — this free audio and Braille service offers more than 500 publications, emergency weather alerts, job listings and more for anyone with difficulties reading print.

Southeastern Guide Dogs

Southeastern Guide Dogs

For people with vision loss, having a guide dog can help ease the burden of everyday activities. This organization provides service dogs, training, food, veterinary care and more at no cost.

American Foundation for the Blind

Technology Resources for People With Vision Loss

From general to assistive technology, these resources can help you learn how to enhance your everyday life while living with changing vision.

Living Well With Low Vision

What Is Visual Impairment

This website provides basic education on vision loss, tips for maintaining independence, how to find low vision rehabilitation services and other important topics.


Help With Mobility Challenges

Siegel Rare Neuroimmune Association

Adaptive Tools and Technology Video

In this video (and transcript), Sandy Hanebrink, a registered occupational therapist, discusses tools that can support you in your community, at home or while driving.

Patients Rising

A Guide to Medical Transportation

This website features articles, infographics and podcast episodes covering everything you need to know about navigating medical transportation.

United Spinal Association

Spinal Cord Help Desk: Traveling With a Disability

The United Spinal Association provides a comprehensive guide for everything you need to know about traveling with a disability.

United Spinal Association

Spinal Cord Help Desk: Wheelchairs

Access essential tools and resources, such as My Wheelchair Guide, to assist with wheelchair selection, delivery and maintenance.


Learn More About Infusion Medicines

The Sumaira Foundation

Infusion Guide

Infusion-administered medicines may slow the progression of NMOSD and reduce the risk of attacks. This guide — offered in five different languages — gives an overview of what you need to know about the infusion process.

REFERENCE

1. Beekman J, Keisler A, Pedraza O, et al. Neuromyelitis optica spectrum disorder: Patient experience and quality of life. Neurol Neuroimmunol Neuroinflamm. 2019;6(4):e580. doi:10.1212/NXI.0000000000000580

Get Help Talking to Your Doctor

Simple steps, such as being vocal and reaching out to your doctor, can help you play a more active role in your health.

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