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DeMonica, Lety and Leah sat down to share what life is like with NMOSD—from the challenges they face to how they lean on their support systems for strength. Later, their loved ones joined in to answer the same questions. These meaningful conversations showed that even those who know you best can learn something new, highlighting how open communication can bring deeper understanding and support.
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It is not always easy to talk about a rare disease, but being open and honest can make a big difference. Explaining to others how NMOSD can interfere with things like work, family and friends is the first step to getting the support and care you need. Check out this guide to help kickstart the conversation.

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